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A new era in cystic fibrosis care: Always changing and adapting

  • Stony Brook University

Research output: Contribution to journalReview articlepeer-review

4 Scopus citations

Abstract

Purpose of reviewThis review focuses on sharing the current and changing cystic fibrosis (CF) care model. This includes changes in CF care as a chronic disease with availability of new revolutionary, highly effective therapies as well as incorporation of shared decision-making, coproduction of care, quality improvement, telemedicine, and remote patient monitoring.Recent findingsChanges in the CF management, the CF patient population, and CF care team are described as well as how CF care has adapted to these changes.SummaryCF is a chronic, multisystem disease requiring a large specialized multidisciplinary care team for effective treatment. With improvements in CF care and new treatments, people with CF are living longer and healthier lives. As new issues arise, the CF team needs to adapt. This was highlighted by the introduction of highly effective cystic fibrosis transmembrane conductance regulator modulator therapy, which targets the cellular defect in CF, the COVID-19 pandemic, which lead to the incorporation of telehealth and remote patient monitoring into the CF care model, and the partnering with people with CF and families through shared decision-making and coproduction.

Original languageEnglish
Pages (from-to)603-610
Number of pages8
JournalCurrent Opinion in Pediatrics
Volume35
Issue number5
DOIs
StatePublished - Oct 1 2023

Keywords

  • coproduction
  • cystic fibrosis
  • highly effective modulator therapy
  • multidisciplinary care
  • shared decision-making
  • telehealth

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