TY - JOUR
T1 - Development of an international standard set of outcome measures for patients with venous thromboembolism
T2 - an International Consortium for Health Outcomes Measurement consensus recommendation
AU - Gwozdz, Adam M.
AU - de Jong, Cindy M.M.
AU - Fialho, Luz Sousa
AU - Likitabhorn, Theerawich
AU - Sossi, Frieda
AU - Jaber, Paula Blancarte
AU - Højen, Anette Arbjerg
AU - Arcelus, Juan I.
AU - Auger, William R.
AU - Ay, Cihan
AU - Barco, Stefano
AU - Gazzana, Marcelo B.
AU - Bayley, Julie
AU - Bertoletti, Laurent
AU - Cate-Hoek, Arina ten
AU - Cohen, Alexander T.
AU - Connors, Jean M.
AU - Galanaud, Jean Philippe
AU - Labropoulos, Nicos
AU - Langlois, Nicole
AU - Meissner, Mark H.
AU - Noble, Simon
AU - Nossent, Esther J.
AU - de León Lovatón, Paula Ponce
AU - Robert-Ebadi, Helia
AU - Rosovsky, Rachel P.
AU - Smolenaars, Noa
AU - Toshner, Mark
AU - Tromeur, Cécile
AU - Wang, Kang Ling
AU - Westerlund, Eli
AU - de Wit, Kerstin
AU - Black, Stephen A.
AU - Klok, Frederikus A.
N1 - Publisher Copyright:
© 2022 Elsevier Ltd
PY - 2022/9
Y1 - 2022/9
N2 - The International Consortium for Health Outcomes Measurement assembled an international working group of venous thromboembolism experts and patient representatives to develop a standardised minimum set of outcomes and outcome measurements for integration into clinical practice and potentially research to support clinical decision making and benchmarking of quality of care. 15 core outcomes important to patients and health-care professionals were selected and categorised into four domains: patient-reported outcomes, long term consequences of the disease, disease-specific complications, and treatment-related complications. The outcomes and outcome measures were designed to apply to all patients with venous thromboembolism aged 16 years or older. A measurement tool package was selected for inclusion in the core standard set, with a minimum number of items to be measured at predefined timepoints, which capture all core outcomes. Additional measures can be introduced to the user by a cascade opt-in system that allows for further assessment if required. This set of outcomes and measurement tools will facilitate the implementation of the use of patient-centred outcomes in daily practice.
AB - The International Consortium for Health Outcomes Measurement assembled an international working group of venous thromboembolism experts and patient representatives to develop a standardised minimum set of outcomes and outcome measurements for integration into clinical practice and potentially research to support clinical decision making and benchmarking of quality of care. 15 core outcomes important to patients and health-care professionals were selected and categorised into four domains: patient-reported outcomes, long term consequences of the disease, disease-specific complications, and treatment-related complications. The outcomes and outcome measures were designed to apply to all patients with venous thromboembolism aged 16 years or older. A measurement tool package was selected for inclusion in the core standard set, with a minimum number of items to be measured at predefined timepoints, which capture all core outcomes. Additional measures can be introduced to the user by a cascade opt-in system that allows for further assessment if required. This set of outcomes and measurement tools will facilitate the implementation of the use of patient-centred outcomes in daily practice.
UR - https://www.scopus.com/pages/publications/85137109916
U2 - 10.1016/S2352-3026(22)00215-0
DO - 10.1016/S2352-3026(22)00215-0
M3 - Review article
C2 - 36055334
AN - SCOPUS:85137109916
SN - 2352-3026
VL - 9
SP - e698-e706
JO - The Lancet Haematology
JF - The Lancet Haematology
IS - 9
ER -