‘LOOK AT US … WE’RE WALKING’: Parental Advocacy vs a Child’s Privacy in the age of Internet Sharing

Many parents with a disabled child find their support needs met online through social media. Numerous advocacy organisations utilise blogs and websites to connect parents of disabled children. While these support sites provide community and resources, not all posts are anonymous. Often highlighting pictures and narratives that reveal intimate and potentially embarrassing information, once posted, they are nearly impossible to erase. With all the benefits of online sharing, the risk to a child’s autonomy is often overlooked and left unprotected. How much sharing is too much? Where might boundaries be set regarding a disabled child’s right to privacy?.