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Toward ethical research practice with deaf participants

  • Boston University
  • University of Virginia

Research output: Contribution to journalArticlepeer-review

67 Scopus citations

Abstract

In recent years, scholars have been critical of what they consider unethical conduct by researchers whose studies focus on members of the Deaf or signing communities. This is the first empirical study that investigates ethical concerns and recommendations from the perspective of three stakeholder groups (Deaf research participants, researchers, and Deaf studies experts). We analyzed focus group discussions using strategies from grounded theory and community-based participatory research. The themes we identified highlight the need for the broader scientific research community to include linguistically and culturally sensitive research procedures that more adequately protect the rights of Deaf research participants, as well as other marginalized groups. We address the need to increase the number of Deaf scientists and reconsider collaboration practices between Deaf and hearing researchers.

Original languageEnglish
Pages (from-to)59-66
Number of pages8
JournalJournal of Empirical Research on Human Research Ethics
Volume9
Issue number3
DOIs
StatePublished - Jul 2014

Keywords

  • Community-based participatory research
  • Community-engaged research
  • Deaf participants
  • Deaf researchers
  • Research ethics
  • Research in host communities
  • Sign language research

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